Disfigurement Understanding Visible Difference

"The new gold standard for understanding the experience of disfigurement, this book is written by an all-star team of experts, most of whom live with disfigurement themselves. Contributions from perspectives of academics, clinicians, advocates, activists, and artists build a holistic understanding of disfigurement. Grounded in voices often excluded from traditional scholarship, this book is approachable for anyone interested in "face equality."

- Kathleen Bogart, PhD, Professor of Psychology, Oregon State University.

"Disfigurement: Understanding Visible Difference, edited by Deguire & Jaffe, weaves scientific research with moving personal stories from people who harbor physical anomalies. The book offers essential reading for anyone who cares about how appearance deeply affects our lives, social interactions, and sense of wellbeing."

- Anjan Chatterjee, M.D., Director, Penn Center for Neuroaesthetics.

"We know that living with a visible difference can come with a significant psychosocial burden for many. From their different yet complementary perspectives, Drs. Deguire and Jaffe have brought together international scholars and those with lived experience to teach us more about the challenges and successes of those living with disfigurement. There is so much the reader will take away from this book."

- David B. Sarwer, Ph.D., Professor of Social and Behavioral Sciences, College of Public Health, Temple University.

"Disfigurement: Understanding Visible Difference is a vital collection that amplifies the voices of those living with visible differences, tackling issues like embodied ableism, media representation, and the impact of social perceptions on identity. With contributions from experts and individuals with lived experience, this book explores both the struggles and the resilience of those who navigate a world that often fails to see their full humanity. Whether you're looking for personal insight, advocacy tools, or support strategies, this book is an essential read for anyone committed to fostering true inclusion."

- Chelsey Peat, Facial/Visible Differences Advocate, Author.